Healing at home

 Hi friends. I’m very happy to share that I made it home Wed. It’s wonderful to be out of the hospital, and while it’s still a slow road to recovery, I’m so relieved that I can be comfortable at home with family and friends. And I can eat somewhat normally! Now that the tumors are out I have much less risk of bowel obstruction, though I still have to be careful due to scar tissue. But after 2 months of not being able to eat well and losing 25 lbs it is such a dream to eat a Nutella crepe with my girls, and have Janice’s delicious homemade lasagna, and Libba’s sautéed spinach and beets and other yummy food that’s so good for my nutrition right now after being deprived for so long. 

I still have abdominal pain and am limited in my mobility but have a very trusty recliner, where I can sleep and chill. And managing 5 bags (1 catheter, 2 drains, 2 nephrostomy tubes) is a pain, but I’m getting used to it. I can drain them on my own and am getting help changing the dressings. I see my urologist Aug 11 and they’ll test to see how my bladder and ureters are working. I might be able to lose some bags at that point, but we’ll just have to see. 

I see my oncologist next week and we’ll talk about a treatment plan. There will likely be some chemo option or perhaps immunotherapy, but we won’t start anything until they are confident my organs have healed, likely a few weeks out. 

I’ve loved getting time with my kids, though it’s challenging to interact with a 3 and 6 year old when I can’t move my abdomen much, and they have to keep their distance. But we’re doing ok. They went to Hocking Hills (foothills of Appalachia just an hour south of Cbus) this weekend. And while I was really bummed to miss the trip these little mermaids are in good hands with their Aunt Vee and Uncle James. This picture is everything to me right now. 

Thanks for following along, y’all. I’m enjoying the sounds of late summer thunderstorms and screeching cicadas in the evening from our front porch. And I guess 94 degree weather is a good time to shave my head. It’s sad to lose my hair again (from just one cycle of eribulin), but Liam pointed out I’ve got a good elvin look going, not to mention a way to honor the renegade Sinead O’Connor. 

Love to all of you,

Molly